Caregiving & support
Caregiver burden, support groups, palliative care, advance directives, family resources.
In this category
State of the art
No update yet for Caregiving & support. An update is a standalone state-of-the-art for the topic — what someone with Parkinson's needs to know about where this approach stands today.
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Longitudinal changes in national incidence of Parkinson’s disease and dementia in Korea: insights from the national health insurance database, 2003–2023
The study found that low-income (medical aid) recipients and rural residents had the lowest disease-free survival for both Parkinson's and dementia across the full 20-year period, suggesting families in these groups face later diagnosis and greater unmet support needs — a concrete argument for proactively seeking timely assessment rather than waiting. -
パーキンソン病公表の美川憲一、傘寿迎え“しぶとく”宣言 - au Webポータル
Mikawa's public statement that he is managing Parkinson's through medication and rehabilitation while continuing to perform provides a real-world example for patients and caregivers navigating how to communicate a diagnosis and maintain identity and purpose after it. -
Addressing Care Partner Burden from the Underrecognition of Iatrogenic Sexual Behavior Changes in Parkinson's Disease Caregiver burden & mental health
This expert perspective argues that care partners of people with PD carry a hidden and underaddressed burden specifically because medication-induced sexual behavior changes (both hypersexuality from dopamine agonists and hyposexuality from antidepressants) are rarely named as drug side effects during clinical care — leaving partners to interpret the changes privately, without the framing or tools to seek help. The authors call for routine clinician screening of sexual behavior changes and explicit disclosure to both patients and partners that these changes can be iatrogenic.